Month: August 2007

  • Three units later...

    Yes, I got THREE units of blood.  It's the first time I've evern gotten that many, but it's also the first time my hgb has been that low.  After the second unit, the nurse said that I was starting to look less and less like the walls, and a bit more like myself.

    I guess it takes 24 hours to reach "equalibrium" in my body, so I'm still sleepy.  Part of it could be the Benedryl that they gave me as well.

    But I've gotten my tank "topped off."

    Today was Dr. H's last day at work before his wedding on Friday.  My mom and I gave him a gift last week, and he told me today that they were holding off opening anythign until Saturday.  How sweet is that?  I think it's a bit old fashioned, and I love it.  One of the chemo nurses told me that she had ordered a tux for their overweight Jack Russell Terrier.  Now THAT'S funny!  But he'll be out of the office next week on his honeymoon to Hawaii.  I hope they just have a wonderful time, and that they love getting away!

    I'm praying for Dr Y (his partner) next week while Dr. H is gone.

    While I was gone, my new bed desk came.  It's not very fancy, and in fact, was one of the least expensive that I looked at, but I love it.  The desk area holds my laptop perfectly, and even though I don't have anything in them, there are pockets on either side of the desk area.  It is going to keep the laptop off of my lap, and maybe it won't be as hot!  If the laptop isn't on it, the desk area can tip upward to hold a book or something.  Interesting.  But very nice.

    OK, I'm still tired.  I fell asleep during the last paragraph.  I'll be back tomrrow when the transfusion has kicked in.

  • I TOLD them so!

    I've been a bit low energy.  My hallucinations have been worse than normal.  It's not the painkillers, 'cause I was on this dose before all of this started.

    So yesterday, I was supposed to go in for a PT/INR to check my coumadin levels.  They're still EXTREMELY high.  In fact, they're critically high.  If I get a major cut, I will likely bleed out before an ambulance gets here.  INR is supposed to be around 2.  Mine was 6.2.  But I talked them into doing a CBC as well, since I was so droopy.

    I asked the nurse yesterday when she called what my hemoglobin level was.  She wasn't sure and said she'd call me back. I told her it was low, and I needed her to check it because I thought it was transfusion time again.

    I also sent an email to the doctor telling him that he needed to check my Hgb and could I please have some blood?

    Around 2:00 today, I got a call.  Not only is my INR 6.2, so is my Hgb.  Normal is 12-14.  So tomorrow, I get blood.  He offered to admit me to the hospital tonight and get it going, but I refused as the co-pay to do it in the office is $50, and to do it as an inpatient?  $500.  My SIL, Lynnie, is going to take me.

    And maybe by this time tomorrow, I'll feel a heck of a lot better.

  • Well, Kim is on her way home. The H family is at The Royal Gorge (I hope having a blast). And I'm resting.

    Kim was wonderful to have here. She and Meleia got the kitchen all straightened up, and then we went to Mardel's, a Christian school supply store. We picked out some cool things for Paul's classroom. We got to drive to Mardel's in Kim's "Pimp-mobile." What a strange little car. She'll have to tell you about it. She pushed the wheelchair very slowly and we were able to shop together. I have a "Be on the lookout" though... We found the cutest box that said, "Every time a child is born, so is a grandmother" or something like that. Kim didn't need/want the box, but we couldn't find it on anything flat. If you guys see that saying anywhere, please buy it, and tell me what I owe you and send it to Kim. It was very cute. I did get Amy the Willow Tree "Angel of the Kitchen."

    We got home from Mardel's just about the time that Amy's family arrived. We had dinner together, and visited and laughed. We found Kim a hotel near Denver's airport, and then I made everyone sit down and watch an episode of "Keeping Up Appearances," which has been my giggle-fest show since getting sick.

    We took a bunch of pictures and then everyone headed out. Joel and Noah helped get me moved from the chair to my bed. My "big brother" tucked me in, and I was soon out for the count. Meleia did what I asked and woke me up to tell me that Kim had arrived at her hotel safely.

    OH, and both Kim and Amy claimed to be able to SEE my peach fuzz. I don't think you can see it yet, but they both said they could. Joel checked it out closely and thinks it's coming in blond. I told him that it's much more likely gray!!!

    Kim and Dwayne have invited Paul to come to their house the last weekend in September. He can't wait. It's the week before we go to Disney the NEXT weekend, so he'll have an exciting couple of weeks! That will be good for him.

    Here's a link to a few of Amy's pics....

  • A hug from God, Jake & Linda

    So today was my CT scan.  I had to have 6 ounces of barium at 11:30, 12:30, and 1:00.  The last 6 ounces were to be drunk in the scan room.  Driving down to the hospital, I started feeling kind of sick.  By the time I got TO the hospital, I was feeling REALLY sick.  We didn't make it past the main hallway before I was tossing my barium cookies into a trashcan.  There was a buffet set up nearby, likely by a drug company, for the docs and nurses of the Cancer Center.  And I heard the voice of my favorite chemo nurse. I called her name between heaves, and she came over to help Stephanie and me.  She ran and got cold washcloths, a towel, and once I was done, scrubs to change into.

    So we weren't sure if they were going to even DO the scan because I didn't have any barium in my system.  Jill, at the front desk called down to radiology, and I think she got the radiology tech that yelled at Paul the last time I was there.  That tech said I had to drink it, get some into my system... no g-tube... And she didn't much care that my stomach was upset.

    Fortunately, when I got down there, a different tech took a look at me, and said that she could likely do it with the residual barium in my system, and she didn't want me throwing up on her on Friday afternoon, so we were going to go ahead and do the scan.  Thank you, God.

    Now, because they were doing a chest scan for the first time, I prayed the entire time they were doing the scan.  Primarily that they would NOT find anything in the chest.  Please, please, please...


    So Steph gets me home, changed into my own jammies, and tucked into bed with my leg elevated because it was swollen.  I took Tylenol because I was aching head to toe. I think I drifted in and out of sleep for an hour or so.

    Then my boys came in.  Their big job today had been to clean out the Expedition.  It was in really bad shape.  They lifted up a "Build-a-bear Workshop" house, and asked me if I knew anything about it.  I didn't.  We opened it up and found a cute little girl bear in a red dress, complete with flowers in her ears and red "undi-bear" panties.  There was a birth certificate in there saying that she had been made on June 6th and it was with love from our friends, Jake and Linda.

    Paul said that he saw it in the truck, but he threw it to the back thinking it was one of the kids'.  Well, dearie, it wasn't.  Evidently, Jake and Linda stopped by and we weren't home, so they put it in the Expedition.  Where Paul threw it to the back seat...

    Her name is "Gracie," and she is very cute.  And today... today, I needed a Teddy Bear.

    I thanked God for the hug.  For the reminder that he is still on the throne, and that I am loved even when I feel lousy, and even when I have to have scans that I don't want.

    Now I get to write a "Thank You" to Jake & Linda and apologize for not finding her sooner.  But I'm kind of glad we didn't...


  • Grrrr.... A Good Day, typed for the second time...

    Cut, pasted, and edited from an email to my Mama...  Just easier than retyping all the same news... 

    Yesterday was just a good day.  Neither Josh (my nephew) nor Joel (my cousin) were on the I-35W bridge in Minneapolis.  Paul got a job.  Ciera’s friend, Collin, was declared to be in remission.  My mom had a long-lost HS friend contact her.  The only bad thing was my very real hallucination dream that Paul was dating a woman from New Jersey, and he really liked her.  Wanted to know if he could keep dating her until I died.   I actually woke up and hit him.  Hard. 

    Oops. 

    I’m working from home today with my leg up.  Michael asked if there was any way to get my cube set up so that I could keep my leg elevated.  He doesn’t understand that it’s not just about putting it into a chair, I don’t think.  And I don’t think they’re going to approve a recliner for my desk chair! 

    3 of the 4 kids spent the night with friends last night, so it was very quiet.  Paul and Mimi watched a movie on our bed while I slept last night. 

    Did I tell you that I was accepted to the Diana Price-Fish foundation?  Starting in August.  I get one “adventure” every month.  And they told me that where there are memberships that fall within their guidelines, they’ll buy those.  For example, I say that in August, we want to go to the Cheyenne Mountain Zoo.  They’ll buy us a family membership instead of just sending us once.  So it’s really a year’s activity.  Same for Denver Zoo or the Botanic Gardens… places like that.  OR They’ll pay up to $100 for concert tickets for 2 or a play or up to $75 for me to go to a pampering spa day.  What a blessing.  Here’s their website.  www.dpfcf.org  I figure it’ll be a good memory-making outlet.  And I’m enrolled until the doctor says that I no longer have cancer.  If you live in a different state, look for a foundation like this for your friends or family with cancer.  It's going to be a wonderful thing for us to do.  If you KNOW that you're supposed to have fun once a month, you WILL have fun once a month.  I figure I can do something with each kid as adventures they want come along. 

    I figured out a very weird trick with the compression stocking.  Last night, I was wearing it, but I was pulling the edge out with my fingers to keep it from digging in.  So, I tried something.  I now have 3 spools of thread tucked in the top edge of the compression stocking in the sore places.  It is large so it can’t dig in!!  Now I can’t wear them that way anywhere but in bed, but STILL! 

    We talked a long time ago about getting a bed table for my computer.  I’m going to order one today.  I just can’t work with it in my lap forever.  It gets too hot.  And right now, I have it on a pillow, but then it can’t “breathe.” And the fan is always on. 

    OK, I have to get back to work. Y'all have a great day!


    I have to add that I hate cutting and pasting to Xanga.  I can't seem to change the color of the font.  Except in ONE paragraph.  So I apologize.  Not sure why ONE paragraph is different...

  • PAUL GOT A JOB!!!!  hE STARTS TEACHING IN LESS THAN TWO WEEKS!  nEW TEACHER ORIENTATION IS A WEEK FROM TODAY!!!

    iT'S A SMALLER SCHOOL DISTRICT, BUT THAT MEANS SMALLER CLASSES, ETC.

    hE'S VERY HAPPY.  tHANK YOU FOR PRAYING!