April 6, 2007

  • Aranesp

    So... anyone want to venture a guess at the cost of an Aranesp shot??

    $4,000!!!!!!!!!

    Yes, that's 3 zeros.  How on earth can one injection cost that much?  I'm so thankful for insurance.  That's all I have to say about THAT!

    I got my hair cut today, nearly boy short. It looks pretty cute, and will be easy to take care of.  I love my stylist, Kara Lee.  She told me that I wasn't allowed to cry after she cut that much hair off.  I could cry in the car, but not before then.   I didn't cry.  I like it.  Paul hasn't said anything.  Not like he hasn't noticed.  I just know that it's shorter than he wants.  It's just that if it's going to fall out in the coming weeks, it doesn't need to be too long.

    Thank you for all of your good thoughts about Walt Disney World.  I will make a way for this to happen with or without a wishing agency.  I have apps from 2 of them, and I'm going to talk to Dr. H on Monday when we go in to discuss chemo.  I'm going to explain that I'm not sure I want to know what he thinks my prognosis is as far as length of time, but that if a wishing agency is going to help us, I have to be in the last 24 months of life.  I'll see what his reaction is.  If he says "OK, I'll fill them out," I'll be both happy and sad at the same time.  But I'll send them in, and see if we can't go.

    Disney sent me a very nice response to my request that they do take requests from wish granting agencies, but not from individuals.  So, I just need to find that magical wish granting agency.  But, if I don't, I'm going to make it work anyway.  If it means going further into debt, then so be it.  We WILL make this trip.  And if there's any way, it will be a surprise to the kids.

    What I want to do is go over Fall Break.  We normally rent a cabin in Grand Lake every other year, and this is the cabin year. I want to have them pack and get ready to go to "a cabin," and then go to the airport and get on a plane.  They will be so shocked.  It will be amazing.  Of course, if a wish granting agency is involved, we may not be able to do it over fall break, and we may not stay in a cabin.  So if that happens, we'll figure out another way to surprise them.

    $4,000 for one injection.  Over $100,000 for a year.  How on EARTH can one injection cost $4,000?!?!?!!?

Comments (6)

  • I believe it. Crazy huh?

  • A friend of mine used to say, "Holy Buckets!" and I think that applies to the cost of the shot. If it improves your health though, I'm all for it.

    I think it's great that you want to plan this trip for your family. I know it will work out with so many people pulling for you. (((hugs)))

  • Evan wanted to know if there was platinum (or was it plutonium) in that shot. Must be something to make it so crazy expensive.

  • Happy Easter, Evie!

    He is risen!

  • {{Evie}} God will provide as he has all along.

  • I came here from one of my subscriber's sites and I wanted to send you love and hugs with all the positive energies I could muster across these miles.  You are an amazing person and I hope your wish for Disney comes true.  You and your family are beautiful.  Keep looking up.

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